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Responsibility for carrying out the medical assessment work is being taken over by Maximus UK Services Limited - another provider whose parent company is based in the US. The exact date when it will start is yet to be confirmed.
Tilly has Dravet Syndrome, a rare genetic epilepsy which causes seizures that could kill her. Their request to Birmingham Children's Trust for respite was refused with the trust suggesting training grandparents to help, even though the family had told them that was not possible.